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For Lucy, EDS means her joints dislocate very easily without trauma, sending her to A&E for emergency relocation and opiate medication many times. At just 20 years old, Lucy has already undergone spinal, hip, jaw, abdominal and bladder surgeries to attempt to manage the condition.

From a young age, many different pain medications were trialled to

try to manage her symptoms. Prescribed opiate medication every

day from age 12, Lucy was finally able to taper off fentanyl at 19,

when she had access to medical cannabis.

For Lucy, opiates did very little to manage the debilitating pain and

caused issues with dependency.  Lucy became increasingly numb to

her emotions. There are week-long periods that she is hardly able to

remember due to being ‘zombified’ by medication. Her digestive

system was also majorly affected, meaning she became reliant on a

feeding tube for 3 years.

Since discovering that medical cannabis was a much more effective

alternative treatment, Lucy has had her feeding tubes removed and

has not taken opiate medication in over a year. She is now able to

participate in regular exercise and is studying at university.

Lucy feels her health has never been better, and while her condition

is not cured, her quality of life is much greater than she could have

ever imagined.

After being given a platform by the UPA, Lucy has had the opportunity to educate medical professionals on her journey and now regularly features in the media. She is one of many patients whose voices are waiting to be heard.

Lucy is passionate about helping other patients access this medicine and working towards a healthcare system that integrates the use of medicinal cannabis in the UK.  

Read more at The United Patient Alliance.